Frustrating Week

I received Ryan’s IEP report.  There were inaccuracies in it.  What’s worse, is that the state agency received the IEP before I did.  The state is satisfied with the IEP, and says that Ryan’s case is ready to go to the “redeterming” board–or whomever judges that.

I was stunned.  Why would the state be willing to knowingly accept incorrect information when the status of his disability could be jeopardized?  I thought we agreed that we want what is best for Ryan.

Also, I pointed out to our state case manager that there was no psych report included in the IEP.  She seemed to ignore that.  She replied that the MET simply wasn’t done.

I asked the school psychologist if there was a report forthcoming.  I received it the next day.  I then forwarded it to the state case manager.  Her response, “Oh, I didn’t have that.”  It seems she didn’t pay attention to my pointing out that the report was missing.

Then there’s trying to correct the wrong information.  No one knows who or what the source was for that info.  It’s taken a few days, but I think it’s been corrected.  I had to write to several people, but patience there has paid off.

This has spun more questions and controversies, though, so there were several more problems to solve.

Just goes to show why the puzzle piece is the emblem for autism.  As soon as you think you have something figured out, SURPRISE–there’s another piece to fit into the puzzle of life.

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sasyjohnson

I am: a) happily married for over 27 years; b) mom to five boys, three diagnosed with autism; c) a home schooling mom; and d) self-employed as a piano teacher. There is no trace of autism on my side or my husband's side of the family tree. Until nine years ago, my youngest four all had disabilities, the youngest three with autism. Five years ago my youngest did not "qualify" for the autism label, rendering him "recovered". My second oldest also "tested" out of his speech delay. My husband and I attribute these successes to the care of many family members and therapists, change in diets, not following mainstream medicine yet listening to medical advice, doing our own research, and most importantly, lots of prayer.

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