Category: PDD-NOS

Three Teenagers–And Then There Were Two!

Nick, Cam, Ryan

Today is the last day I will have three teenagers in my home.  Tomorrow Ryan turns 20.  Talk about him growing up within the blink of the eye, but then I think of all the tears and joys along the way of his 20 years.  Quite a life he has lived so far.

For the first couple of years of his life, Ryan was fearless.  He knew no boundaries.  It was scary.  He met all his milestones early, such as walking when he was nine months.  As he developed sensory issues, he lost communication skills.  We went to doctors and specialists for several years.  He was diagnosed with several ABCs, 123s, meaning PDD-NOS, ADD, OCD, and speech delay.  Ultimately he was seven when he was diagnosed with autism.  His brothers were diagnosed the same year with autism too.

Our world was rocked.  We brought in lots of therapists to work with them.  None of the boys liked strangers.  Until Meredith.  The boys took to her.  Ryan was the fastest to respond because he liked her baby.  Meredith and Baby brought Ryan out of his world.  We loved her immediately.  She also worked well with Nick and Cam, but most people had the hardest time establishing a rapport with Ryan.  Unfortunately, Meredith moved, and Ryan had to adapt.  That didn’t work so well, but that relationship showed us that Ryan could connect with people outside the family. That was 12 years ago.

Ryan showing Dad his photos

Ryan has had many therapists since, and he has moved beyond what any doctors thought possible.  He continues to grow beyond our initial hopes after the diagnosis.  In fact, he finding his way in the world slower than his peers, but he is succeeding.  For example, we have been surprised by his maturity in the last year, especially as illustrated in his photo shop class.  He was quiet and shy, and now he is assisting beginners.

I can’t wait to see what this decade will bring Ryan!

Second photo credit:  RMG Imaging Artists

Prepping for Surgery

I tried to describe this experience to a friend:  The “something that may be cause for concern” is a “nothing to worry about” that “needs surgery”.

I’ve seen a few healthcare professionals recently.  At every appointment, I’d hear the same tip-toe dance.  As the medical visit progressed, the doctor or nurse became very reluctant to speak.  The above quotes were uttered by these medical professionals, just not how I have strung them together.

This reminds me of all the testing Ryan went through before being accurately diagnosed with autism.  Ryan was two years old when we started seeking medical help.  At the age of 5, he was initially diagnosed with PDD-NOS (Pervasive Development Disorder-Not Otherwise Specified), meaning there was something going on, but the docs didn’t have a clue.  As the years passed, ADD, ADHD, OCD,  and speech delay were added to the list.  Doctors couldn’t agree.  Just for humor, I added ABC and XYZ to the list.  When Ryan turned 7, he was finally diagnosed with autism.

I have since learned that medical and educational professionals like to “ease” parents into a potential diagnosis.  They seem to think that is acceptable, and we parents appreciate the steps leading to a devastating reality.  NOT TRUE.  At least, in my case, I’d prefer to be told the worst case scenario, and then ease up if necessary.  Each diagnosis that Ryan endured broke my heart more and more until it was finally shattered with the diagnosis of autism.

So now it comes to me and a lump.  Each nurse or doctor initially told me not to worry.  However, when each heard my family history of “lumps”, the demeanor changed.

My father has survived several types of skin cancer, including melanoma.  He has also survived lung cancer.  Twice.   The last time he was given 4 months to live.  That was 13 years ago, and he is alive and well.  I call him a walking miracle.

So out will come this lump.  I told my sons individually.  Each reacted differently.  Stu freaked.  Ryan and Nick accepted it quietly. Cam was on the phone, telling his friend all about it. They understand that, as of now, it’s just a lump.  When it comes out, it will be sent to the lab, we’ll find out if it is something more serious.

I am still not worried about me.  I am concerned about my sons and being to progress without guidance, so the focus this summer will be to give them opportunities to problem solve and be independent.  Of course, all parents strive to teach their children to be independent.  It will just take a little longer for my boys with autism.  With or without me.