Autism: Paper Never Ends

I’m drowning in a sea of paper.  I sort.  I file.  I purge.  I shred.

I know science says that spontaneous generation doesn’t occur, but every mom of a special needs kid knows otherwise!

I invest hours maintaining files, and I never seem to keep up.  My desk has files to be filed.  My table has mail to be sorted.  My counter has paper to go somewhere…

It’s a thankless job, but worth doing.  Every step of every process demands proper documentation of diagnosis and prognosis.  Schools, doctors, insurance, and government might help IF the paperwork is complete.  The proper paperwork must always be filled out before anything is done.

Yesterday I talked with a counselor at the local community college regarding the potential enrollment of my autistic son.  The first words out of his mouth were, “Do you have proper documentation?”  I laughed, and I said, “How many years of documentation do you want?  I have every assessment, psychological evaluation, doctor’s notation, specialist’s recommendation, and school IEP since my son was three.”  Silence followed.  He responded, “Well, most people don’t have that much. I guess just bring the most recent.”  Easy to do.

So as I keep this need for documentation in mind, I continue to sort, file, purge, shred. 

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sasyjohnson

I am: a) happily married for over 27 years; b) mom to five boys, three diagnosed with autism; c) a home schooling mom; and d) self-employed as a piano teacher. There is no trace of autism on my side or my husband's side of the family tree. Until nine years ago, my youngest four all had disabilities, the youngest three with autism. Five years ago my youngest did not "qualify" for the autism label, rendering him "recovered". My second oldest also "tested" out of his speech delay. My husband and I attribute these successes to the care of many family members and therapists, change in diets, not following mainstream medicine yet listening to medical advice, doing our own research, and most importantly, lots of prayer.

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